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Invited Commentary |

Patient-Centered Outcomes Research—Opportunities for Novel, Innovative, and Transformative Partnerships With Patients and Their Families ONLINE FIRST

Rebecca A. Aslakson, MD, PhD1,2; Matthew Weiss, MD3
[+] Author Affiliations
1Palliative Care and Pain Program, Sidney Kimmel Comprehensive Cancer Center, Johns Hopkins Medicine, Baltimore, Maryland
2Department of Anesthesiology and Critical Care Medicine, Johns Hopkins School of Medicine, Baltimore, Maryland
3Department of Surgery and Oncology, Johns Hopkins School of Medicine, Baltimore, Maryland
JAMA Surg. Published online June 29, 2016. doi:10.1001/jamasurg.2016.1321
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The US Patient Protection and Affordable Care Act of 2010 established the Patient-Centered Outcomes Research Institute (PCORI), a national nonprofit to fund patient-centered comparative effectiveness research and extend “the concept of patient-centeredness from health care delivery to health care research.”1(p1513) As defined by PCORI, patient-centered outcomes research (PCOR) is “the evaluation of questions and outcomes meaningful and important to patients and caregivers.”1(p1513) Since late 2012, PCORI has directed more than $1 billion into nearly 700 projects in 45 states, Puerto Rico, and the District of Columbia.2 At least 10 surgical projects are currently funded and range from patient-reported outcomes across different types of bariatric surgery3 to advance care planning before major cancer surgery,4 with some groups already publishing results.5

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