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The Need for Postdischarge, Patient-Centered Data in Trauma ONLINE FIRST

Arturo J. Rios-Diaz, MD1; Jimmy Lam, BS1; Cheryl K. Zogg, MSPH, MHS1
[+] Author Affiliations
1Center for Surgery and Public Health, Department of Surgery, Brigham & Women’s Hospital, Harvard Medical School, Harvard T. H. Chan School of Public Health, Boston, Massachusetts
JAMA Surg. Published online August 24, 2016. doi:10.1001/jamasurg.2016.2343
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This Viewpoint assesses the current status of postdischarge data collection in US trauma registries.

Trauma accounts for 199 800 deaths and 30.9 million nonfatal injuries in the United States each year.1 Among survivors, the long-term consequences can be devastating in terms of both medical considerations, such as risk of readmission and need for rehabilitation, and patients’ lived experience, affecting functional outcomes and health-related quality of life. Data from the Centers for Disease Control and Prevention suggest that in 2010, estimated annual lifetime costs due to trauma totaled more than $187 billion (an average of $1.05 million per person), of which 98.9% ($1.04 million per person) was due to loss of work alone.1 Recent work by the National Institutes of Health and American College of Surgeons recognized this issue, calling for a need to consider longer-term outcomes of care and to implement patient-centered methods to collect postdischarge outcomes in existing trauma registries.2 Consensus statements from Europe tell a similar story.3 Nevertheless, despite widespread recognition, there remains a paucity of data concerning the postdischarge experience of trauma patients, particularly as it pertains to patient-centered outcomes. On a national scale, it is not known what information is being collected.

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